Alzheimer's Disease !
I read a friend’s post about a veteran suffering from an early onset of Alzheimer’s dementia.
I have been disturbed since then and all those
patients I have seen over the course of the last 20 years, their faces flashed by; some faces easily remembered by their names, some easily forgotten.
Usually, I post photos of myself or children or something
that takes my mind off but it’s not working and hence here is my little
rambling.
My heart goes out to this woman who is taking care of her
husband and two children, this woman who was once a wife and still is but now must
take care of her husband as a mother …...
I am not an authority on how the US government treats
its veterans but after working in the nursing homes as an
Occupational Therapist for so long ( In the USA, nursing home is a place for
adults 65 years plus where they can get assistance if they can no longer
live at home independently, meaning if they are
not able to perform even routine tasks such as feeding self , bathing,
dressing or getting up and going to the bathroom); having worked with them and
their families first hand, I have an idea about how one suffers
silently taking care of their loved one with Alzheimer’s.
It is not just about the person himself who is
suffering from the disease but about the caregiver, family, and loved ones. I
have seen many people suffering from this dreadful disease reduced to a mere
body, the disease that starts out with a memory loss at first, wandering
behavior as they start forgetting their whereabouts, to then a complete memory
loss eventually losing or forgetting the ability to speak, move or even to eat,
losing all cognitive function such as thinking and reasoning. While the person
inside the body is lost, the most burden is placed that on the caregiver, to
take care of your loved one who is physically there but isn’t there, to make
sure the car keys are taken away, all the doors are locked, the electric
appliances are either locked/turned off (I had a patient once who put a cat in
the dryer), it eventually takes a toll, emotionally drains you while the person
himself is totally oblivious to his/her surroundings. The caregiver goes
on for days, months and sometimes for years in the grim hope of
some lucid moments that are frequent in the beginning but slowly
disappear altogether , that they will recognize you, the children, even
if it is for a few seconds . It’s sad but it’s real with no cure.
I have come across many caregivers going through feelings
of guilt when they must place their loved ones into a nursing home or a lock down unit (for
the patients’ safety).
If you know a person who is taking care of someone with
Alzheimer’s, besides offering your prayers, please offer them some support, run
some errands for them, or just go in and spend some time with them as they
themselves are social outcasts. More than half the time, the caregiver isn’t
sure what course of action they should take. I know nobody likes to talk about
death but it’s real. Make sure you talk to your loved ones about your wishes. It’s
worse than taking care of a baby where the baby shows you some signs of affection,
but in case of Alzheimer’s, there is this grown-up person reduced to just a
“body.” My ramblings on this Thursday!!!!
Image obtained from Google.
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